Caregivers support group

I have been going to a caregivers support group once a month. I find it fascinating at how different how different each person with Alzheimer's is as the disease progresses.

Some with early onset Alzheimer's still have young children living in the home. This creates a lot of problems and the caregiver can feel very pulled in who needs their support at any given time. Children also need to be children and do things other kids do. Several caregivers of those caring for someone with early onset report how they are often hit and yelled at. They discuss very aggressive behaviours and yet when in respite care they are still at rest home level. I listen and think how lucky I am that neither John nor Mum have been aggressive.

Some find that the person with Alzheimer's does not want other family members visiting. This effectively cuts support for the carer, a real worry as people can become more and more isolated.

I am always impressed at how well carers cope and adapt to changing situations. It is often overlooked by others. If you know someone who is a carer don't criticize or offer 'helpful' advice. If you can support them by staying over for a night or two while the carer goes away. Take over a prepared meal, or take the person with Alzheimer's for the day ( or an afternoon ). Try to be on the same page as them - don't give them more stress, they have enough to cope with.

The big thing for carers is to make sure they look after themselves too.