In the last post I spoke about the routines in relation to the person with Alzheimer's. I also find it important to have a routine for myself which works around him. For example I check and clean up any mess in the house as soon as I wake up, I wash towels on Friday, bed linen on Saturday (before going to the home to Mum). There are times when I can go and have a coffee with friends e.g. Monday or Thursday around 10.30.
As a caregiver there are times when you want to let off steam. Most others don't want to hear and don't understand. Other people just want to think you are quite happy in your situation or will tell you things such as 'we all have our challenges' which is of course quite true. I think that part of the problem is that none of us ever sign up for this role (I can't say it was ever something I considered). Other people who are in the same situation (or have been in a similar situation) have an understanding as do the people at the Alzheimer's, it is better for everyone just to talk frankly to these people.
It is important to take the time to enjoy the odd little special times as they arise.
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